23 December 2007

Life in the NICU

Life in the NICU
As of now, baby Chase is in the NICU at Children's Hospital in Birmingham. We too are in Birmingham and staying with family, although we are mostly in the NICU. Conner is here with us as well.
Chase has not had a seizure in over 24 hours, since leaving Montgomery after being flown to Birmingham via emergency helicopter. Until this morning, Chase was being treated symptomatically for the seizures and associated breathing problems (due to his high doses of pheno barb - a seizure medication). Now, we have the results from an MRI/MRA (a vascular MRI) of the brain and Chase has been diagnosed with Sinus Venous Thrombosis. This means he has a blood clot in the vessel known as the Sinus Venus that runs down the top of the brain. The pressure causes the seizures and bleeding. They are running genetic tests to determine if this is a long term problem or if this was just a one in a million fluke. We will know more later, but he will soon be able to start receiving nurioushment (in the form of pumped milk from me) via feeding tube, which is great news to me. However, in an infant there is nothing that can be done currently for the clot, as medication would cause more than excessive bleeding. For now, it's the waiting game for all of us.
MIchael is doing well and is doing night shifts at the NICU from about 2 a.m. - 5 a.m. in addition to the other hours we are putting in. I was discharged early to come to Birmingham and am trying to do the best I can physically. Emotionally, we are holding strong and are heartbroken that we can't be with our angel (both our angels) 24/7.
We are asking that you please keep our little man in your thoughts and prayers and we want you all to know we really appreciate all the great things you are doing for us now. We want our baby home and healthy... and prayer is the only thing we have right now.

With Love,
Amanda

2 comments:

  1. I am so sorry that y'all are having to go through this. I will be praying for Chase, and for you & Michael & Conner too!

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  2. I know you're extremely busy, but try to keep us updated when you get a chance. We'll continue to pray.

    ReplyDelete

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