Chase was born on a chilly December day, 2 years ago next week. Within hours of his birth, he began seizing. We were expecting a healthy, full-term baby, and what we got was far from that. It sent a shockwave through my entire system - my newborn baby was fighting for his life.
You can find bits of Chase's story throughout my blog:
NICU: First 24 Hours (sadly never blogged the following days...)
The Update Post
Share Your Story for Children's Hospital of Alabama
The Cement Roof
The summary:
It was soon discovered Chase was seizing from extra blood on the brain (a grade 3 or 4 bleed), the pressure caused seizures, and his bleed was severe. Unsure of how to treat him, the local hospital put Chase on seizure medication, intubated him (as the medication surpressed his breathing to the point where he could no longer do it unassisted) and placed him under "do not stiumlate" protocol.
For me, this meant that I could only look at my hours-old son. No touching. No talking. Absolutely nothing except prayer from a distance.
Because Chase's condition was so incredibly rare (we are talking in the one in several million range) for a full-term and otherwise healthy baby, he was soon taken via helicopter to Children's Hospital of Alabama in Birmingham.
It was there I felt Chase had a chance.
He was removed from his "no stimulation" orders, placed on less medication, eventually extubated, and a few days later, Chase had an angiogram to find a "cause". His nurses were amazing. Everyone understood our situation, tried to be as accomidating as possible (it was Christmas and we were from out-of-town), guided us through difficult decisions and made extra efforts to respect our wishes.
In short, Children's Hospital saved Chase's life.
The level of medical care combined with their compassion and experience far beyond that of a "regular" hospital became the perfect combination.
The aftercare we've receieved has been amazing. Nurses on call for any issue, quick response time during problematic episodes and speedy appointments with specialists.
Chase has managed to absorb all of the blood without ever being shunted. He has no (known) neurological damage. He is developing completely "normal". We are stunned.So to benefit Children's Hospital of Alabama, Michael and I have decided to raise a little cash. We are opening comments for the day and each comment made on this post will equal 10 cents. (Sadly, I've turned on the capcha due to bots on this site, silly bots). You can leave as many as you'd like. Also, you can retweet this (Twitter.com):
Benefit post for @ChildrensALA from @themomjob. Each RT earns 10 cents. http://themomjob.net
If you'd like to donate to Children's Hospital with your money (hehehe), I have added a "Donations" PayPal Button in the right column near the top of this page.
Thanks to BirmminghamMommy.com for featuring this benefit post! And obviously, thank you to Children's Hospital for our amazing son, Chase.



Woo Hoo! We're so excited for today and for your super sweet way to honor Children's Hospital! (Jamie)
ReplyDeleteAwesome story! We spent a two night in Children's a couple of years ago after my then 13MO had a seizure. The staff was so good to us, so accomodating. I will never forget our time there! Thank you for doing such a wonderful thing!
ReplyDeleteLeaving Love
ReplyDeleteAmanda...You know my heart when it comes to Children's Hospital because it's the exact same as yours! I'm absolutely in love with Children's Hospital of Alabama and their staff! Thank you so much on behalf of all NICU mommies (in particular) for posting this awesome opportunity for people to give back to this GREAT facility! I even sent the NICU a Christmas Card this year and they will continue to be on our Christmas Card address list from now on! I feel, as I am sure you do too, that they are family. (I mean, seriously! we practically LIVED there for almost 3 months!) So, this post just makes me love you and your family even more! Ya'll are blessed to have the means to do something like this! Merry Christmas!!
ReplyDeleteGreat thing you're doing! Glad everything is now ok with your cute little boy!
ReplyDeleteI can't help but love the fact that there are people out there who pour their heart out for these children. They truly are a Godsend.
ReplyDeleteSuch a great cause LOVE IT
ReplyDeleteWhat a great cause!!
ReplyDeleteWow what a story!
ReplyDeletewhat a blessing!
ReplyDeleteYAY for Chase! And YAY for his Panda Cupcakes ;-D
ReplyDeleteGreat story!
ReplyDeleteHe is such a cutie! I can't belive he is already 2!
ReplyDeleteAwesome Cause! leaving love!
ReplyDeleteHi from Birminghammommy! We think this is the most awesome thing yet!
ReplyDeletehmmm- how many comments would be concidered obnoxious since you said there was no limit on comments? ;-)
ReplyDeleteI'm stuck on bed rest again to prevent my own special trip to C.H. NICU and I can be quite persistent! lol
Incredible story!
ReplyDeleteThankful to have not visited Children's, and thankful it is there for those in need!
ReplyDeleteHopping over from MckMama's blog. Glad to get to know Chase's story. When exactly was Chase born? I tried to find it on your blog but I didn't see an exact date. My birthday's the 20th that's why Im curious.
ReplyDeleteWell 18 years earlier anyways.
Happy Birthday Chase
Leaving another big hug!
ReplyDeleteWow what a story! I can also say that Childrens has been there for us so they hold a special place in may heart for taking care of my sweet angel during her surgeries and unexpected trip that landed us there for a week...
ReplyDeleteLeaving another little comment nugget of thanks!
ReplyDeleteYay for Children's!
ReplyDeleteGreat Story.
ReplyDeleteI have no idea how I came across your blog, but I recognized you from your Camp Winnataska days. What a blessing you have in that sweet boy!
ReplyDeleteGreat story!!
ReplyDeletecommenting.
ReplyDeletegreat thing you're doing! :)
10 cents worth of comment here :)
ReplyDeletea little dollup of comment luv here
ReplyDeleteSo thankful for wonderful hospitals like this! We've never needed one, but it's so good to know they are there with all of their compassion & knowledge!
ReplyDeleteAwesome idea & cute video of your little munchkin!!
ReplyDeleteGreat idea!!!
ReplyDeleteGo Chase!
ReplyDeleteWoo Hoo!
ReplyDeleteComment hugs!
ReplyDeleteChase for President!
ReplyDeleteChase is the man!
ReplyDeleteWho is the man? Chase. (sung like Shaft, you dig?)
ReplyDeletePandas are awesome.
ReplyDeleteChildren's Hospital of Alabama rocks!
ReplyDeletecha ching.
ReplyDeleteCommenting about how many wonderful commenters you've had today! Some excellent people out there!
ReplyDeleteYou did say no limit right?
ReplyDeleteI wish I had a panda cupcake. I'm just sayin'.
ReplyDeletecommenting...
ReplyDeletebless y'alls hearts
(southern comment)
Is this cheating? :o)
ReplyDeletedid someone say panda cupcake?!?!
ReplyDeleteLove this. What an adorable little boy!
ReplyDeleteaaaaand I'll bring you to 50. Sorry you have to make a PERSONAL REQUEST. I'm terrible. You are not.
ReplyDeleteChase is adorable. I hate that this only makes comment 51.
ReplyDeleteonly look 52
ReplyDeleteMy Jack has had surgery at Children's too
ReplyDeleteMy friend Donna is a nurse there
ReplyDeleteTruly wish I could go on all night but I've got some stuff I gotta do before I hit the hay and start all over again tomorrow
ReplyDeleteI have a lot of love for Children's and the work they do. Your son has an amazing story!
ReplyDeleteMore comments for a great cause! :)
ReplyDeleteOh and to add - my cousin's son has SMA Type 1 so they've spent a lot of time at Children's. Like you, they come from out of town and always talk about how wonderful the staff is!
ReplyDeleteGod bless your family and the people working at Children's Hospital.
ReplyDeleteLeaving more love for the Childrens Hospital!!
ReplyDeleteA heartfelt post for a great cause!
ReplyDeleteWhat a wonderful cause!
ReplyDeleteChase's Nonna is soooo very thankful for the way Children's saved her grandchild and for all the help they provided to the family.
ReplyDeleteFrom the pharmacy opening to fill a pain medication prescription for Amanda to the nurses, doctors and other staff members who made the stay with them a little easier over the Christmas holidays.
Amazing story! So glad he is a healthy kid now.
ReplyDelete